Me, Post-Op Bilateral Prophylactic Mastectomy

Waiting for the call….

As 2012 began to wind down, my mobility had returned to almost normal.  Three surgeries were now a thing of the past, just a memory.  The scars from the bilateral prophylactic mastectomy and DIEP flap procedures were healing nicely and the aches were improving with every day.  I began to set my sights on 2013 and a new start, one without worries about cancer risks or surgery.

Then came a visit to the gynecologist in October.  Based on the findings of lobular carcinoma in situ during the BPM, the doctor felt it would be smart to have a pelvic ultrasound due to the link between breast cancer and ovarian cancer.

On November 7, 2012, my thoughts of a worry free 2013 quickly came to an end when complex cysts were found in my right ovary.   January 14, 2013 I repeated the ultrasound hoping for improvement but found worse news.  The cyst was still there and larger, one was now also located on the left and something was seen in the lining of my uterus.  Worry free 2013 was long gone! A biopsy was performed as was a CA-125 blood test.  Both came back showing no cancer.  Instead the item on the uterine lining looked to be a polyp.  An endometrial ablation was recommended.  I decided to wait until a third ultrasound could be performed so we could make a decision about the cysts at the same time.

April 2, 2013 I went for that final ultrasound.  After I did something I do not normally do, I made a list of questions.  I was done having ultrasounds every few months and wanted to be ready for a real conversation about moving forward. Questions such as, Do we remove the cysts in the ovaries at the same time as the ablation? Do we remove an entire ovary or both?  Do we go fully radical and remove it all?

I was prepared for everything except for what came next.  The call came along with the normal pleasantries, how was our trip to Disney?  How was I feeling?  Although I do personally like my doctor, I wanted the results.  She stated with a long “WELL”, I was a bit nervous.  She continued, “the cyst on the left is gone, and the one on the right has reduced in size”. Ugh, what?  Gone?  The words swirled for a second in my head until I finally realized, this was good news!  I actually said to her, “well that is good news, right?” No more ultrasounds!  Not so good news about the uterine lining which showed a new cyst/polyp but we already knew that would not correct itself.

SO, I have a pre-op appointment at the end of May to prepare for the endometrial ablation.   My list of questions went onto the trash. In the greater scheme of where I have been and what I was expecting, a minor surgery! I would much prefer to stay out of hospitals yet, compared to the alternatives, I am pleased, and thankful!

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Me

Here we go again

Tomorrow I once again get to enjoy the wonders of modern technology in the form of a pelvic ultrasound.  This will be the third one in a period of about 5 months.  I am not worried about what they find because I expect that they will be about the same.  I expect the cysts will still be there, meaning we will need to talk about what comes next.  The polyp will still be there since that does not rectify itself.  An endometrial ablation was recommended but I decided to just wait until we got the results of this ultrasound before even continuing to discuss dealing with the polyp.

To say that the ultrasound is invasive is an understatement.  I am growing weary of them and would love to hear that the cysts have disappeared and all is well with the world.  Right after I expect to see pink unicorns and hear happy music playing in the background while money falls from the sky.  So in my mind the odds of the second statement occurring is just as likely as the first so I am not optimistic, although unicorns and falling cash would be very cool!

Until tomorrow I guess….

Me, Post-Op Bilateral Prophylactic Mastectomy

New year same as the last

It is 11am and I am fully ready for this day to end!  Never good right?  I finally talked to the doctor and wish I never had.  I can not say that I am in the least bit surprised but the ultrasound was all bad news.  Not only was there no improvement the news has grown darker.  To start with my ovarian complex cyst on the left is still there and now has a buddy on the right.  The doctor still does not feel that this is a huge concern but is ordering a CA125 which seems to be blood work to help detect ovarian cancer.  Hopefully the blood work shows no issue and we will be left with repeating the ultrasound yet again in a few months.

So, it could end there but hell why would it?  Seems that this ultrasound also picked up two cysts just chilling out on the lining of my uterus. She also feels these are probably nothing to worry about but put it all together add in the recent prophylactic mastectomy and cancer markers then use the word “probably” and my nerves are shot. I guess a few drinks before the bus stop is not advisable.

Thankfully they have gotten me in next Thursday for a biopsy and I will get the blood work as soon as I receive the script.

I will do my best to continue positive thoughts.