20 Days Post Prophylactic Mastectomy

After dinner tonight I put on my sneakers and out he door I went with my girls.  We went for an adventure..well we walked around the block. Being as it was the first time I have left the house for anything other than a doctor’s appointment it is the closest thing  to an adventure as I am going to get.  Lap number one went great…”let’s go around again”.  Sounded better coming out of my mouth then it was in reality.  Half way around I began to struggle.  We made it home but I do believe I bit off a little more than I was ready to chew.  Oh well…no harm no foul I guess. I am not in the best of moods at the moment though…sitting quietly by myself waiting for a pill to kick in.

SO for the updates, the abdomen continues to heal nicely.  A few spots still a bit raw but for the most part wonderful.  I took a shower yesterday but since I have had some weeping on my left breast at the corner of the flap.  I think some of the scab once wet came off leaving this little spot of weeping.    It is not a lot and it has no odor and is watery thin.  The site is not red or warm and there is no increased pain.  For the most part it is colorless maybe a tinge yellowish.  At first I was worried but as I was released from the hospital they warned of some weeping.  Of course I spent some time on the internet looking around about it and have decided it is not an infection.  I will keep a close eye on it.

Other than that physically still sore but each day still get better.  I am a bit annoyed that a small walk around the block wipes me out the way it did but I will get over it.  All in all doing great!

A bit of a Rant

I have never been an avid reader.  My mother and sister both could sit for hours book in hand world tuned out.  My mother tried with me to no avail.  This also made school especially college very interesting.  I guess I am pretty smart.  I graduated with a 3.5 GPA and Dean’s list but my deep dark secret is that I don’t believe that I ever completed a reading assignment.  I used to read the top and bottom line on a page..mabe peek at the middle if I did not get the gist of the page.  I look back now and wonder, how would I have done in school if I actually read an entire book?

This is on my mind right now for two reasons.  First my oldest daughter.  My Megan is a lover of books and I do everything I can to encourage her love!  SHe is sitting here with me right now reading.  She just completed the second grade but the last school check put her on about a fifth grade reading level.

The second reason is that lately I have actually been reading.  I spend much time on the internet reading different blogs, mostly on breast cancer, BRCA genes, Prophylactic mastectomy and another disorder called Cowden Syndrome. When I started this blog, as  I stated before, it was just to clear my own thoughts.  Then I found some blogs that helped provide me strength to move forward and now I sit as one of those blogs that is helping others.  I welcome this change of rolls and take it seriously.

AS I read, I find two themes to be particularly alarming in my opinion even dangerous.  NOW, let me be clear that I am not referring to woman who had been diagnosed with cancer.  I am specifically discussing those of us who are extreme high risk for one reason or another who are lucky enough to be able to take control of our situation before cancer strikes.  The first theme is the  self-pity “breasts are what make me a woman”.  Really?  What makes me a woman is my strength, my do anything attitude, I take responsibility for my own actions, my intuitions, nurturing ability, gentleness and compassion,my ability to kick ass when needed,  my manipulation skills, my pride ,my ability to ask for directions when lost and oh yes that vagina thing (to name just a few).  Breasts themselves are actually just fat that in many cases attack the body they were lucky to be a part of so removing them is not affecting your womanhood but instead securing it! Again, just my opinion.

The other was the “why would you cut off a perfectly healthy part of your body”.  To this I would assume that the person asking is just that..perfectly healthy.  A person who would ask this has not been kept awake at night for weeks at a time waiting for the most recent biopsy results to come back.  They have not had to lie face down in an MRI machine for 45+ minutes, breasts uncomfortably tucked into hard plastic molds. They have not been at a dinner party only to have the thoughts of breast cancer fill their minds instead of the conversation at hand.  They have not been told that you have a 50-50 chance (or in many cases much worse odds) of falling victim to breast cancer.  They have not then had to sit in a room with more than two woman and realize that if someone was going to get cancer statistically it would be me.

So to sum it up I guess I would say this.  Unless you are able to put yourself fully in the shoes of another…keep your opinion to your self.

No Bra

So when I was at the doctors the other day he reaffirmed that I am under no circumstances to wear a bra until at least the next time I see him in 3 weeks.  No Bra…last time I can say that I could get away with walking around town (not that I am going anywhere right now), without being ticketed or poking myself in the eye was like maybe when I was 12?

Heading into the surgery I was a 40DD.   I had thought about reduction for a while but once this process started it was like “all in”.  We agreed that we would be going smaller but he could not guarantee a size per say and that we would need to “tweak” the initial work which would be done at the time of the nipple reconstruction.

So the no bra thing is really is not a problem at all for a few reasons, first they are still so swollen they are like annoying (yet non moving) bricks on my chest.  Second, I am not going anywhere fast right now, and third they are well, not at all “boob” shaped.  They are clearly different sizes and I swear they point in different directions. They strike me as more square.  I will need another small procedure probably in about 4-5 weeks back in the main hospital OR.  my Surgeon say it will be about a 2 hour process where he will hide the flap, build new nips and liposuction the new bricks boobs. The plan is that since I was so large anyway, to utilize the extra skin that would have been cut away in surgery.  Instead of having to harvest skin for the new nips, he will gather what is forming around the new flaps as the swelling goes down and make the nip out of it , at the same time hiding the flap and  creating a nice “boob” shape.   The doctor says they will be lovely when finished and not to worry.  Honestly, I am not at all worried.  I fully trust in my plastic surgeon and the “boobie vision” he has painted for me.  For now I have been hanging out in a tank top which I pin the last drain to but then put a baggy button down over top.  It works.

Anyway, yesterday was a down day.  I really spent the day just lying around and napping.  Frank took the girls out for a few hours in the afternoon which was great.  I had no real energy or inclination to do anything more than hang out in my size smaller bike shorts. Sleeping is improving (still with assistance).  Almost made it through the night.  Closest I have come anyway!