Me, Post-Op Bilateral Prophylactic Mastectomy

Waiting for the call….

As 2012 began to wind down, my mobility had returned to almost normal.  Three surgeries were now a thing of the past, just a memory.  The scars from the bilateral prophylactic mastectomy and DIEP flap procedures were healing nicely and the aches were improving with every day.  I began to set my sights on 2013 and a new start, one without worries about cancer risks or surgery.

Then came a visit to the gynecologist in October.  Based on the findings of lobular carcinoma in situ during the BPM, the doctor felt it would be smart to have a pelvic ultrasound due to the link between breast cancer and ovarian cancer.

On November 7, 2012, my thoughts of a worry free 2013 quickly came to an end when complex cysts were found in my right ovary.   January 14, 2013 I repeated the ultrasound hoping for improvement but found worse news.  The cyst was still there and larger, one was now also located on the left and something was seen in the lining of my uterus.  Worry free 2013 was long gone! A biopsy was performed as was a CA-125 blood test.  Both came back showing no cancer.  Instead the item on the uterine lining looked to be a polyp.  An endometrial ablation was recommended.  I decided to wait until a third ultrasound could be performed so we could make a decision about the cysts at the same time.

April 2, 2013 I went for that final ultrasound.  After I did something I do not normally do, I made a list of questions.  I was done having ultrasounds every few months and wanted to be ready for a real conversation about moving forward. Questions such as, Do we remove the cysts in the ovaries at the same time as the ablation? Do we remove an entire ovary or both?  Do we go fully radical and remove it all?

I was prepared for everything except for what came next.  The call came along with the normal pleasantries, how was our trip to Disney?  How was I feeling?  Although I do personally like my doctor, I wanted the results.  She stated with a long “WELL”, I was a bit nervous.  She continued, “the cyst on the left is gone, and the one on the right has reduced in size”. Ugh, what?  Gone?  The words swirled for a second in my head until I finally realized, this was good news!  I actually said to her, “well that is good news, right?” No more ultrasounds!  Not so good news about the uterine lining which showed a new cyst/polyp but we already knew that would not correct itself.

SO, I have a pre-op appointment at the end of May to prepare for the endometrial ablation.   My list of questions went onto the trash. In the greater scheme of where I have been and what I was expecting, a minor surgery! I would much prefer to stay out of hospitals yet, compared to the alternatives, I am pleased, and thankful!

Me, My Family, Our trip to Disney World

I get to go to Disney with a clear head!

I received a call from the doctor this morning with the results of the endometrial biopsy.  There is no cancer!  They were not fully normal but for the purposes of my worry level they were fantastic!  What has been identified is an endometrial polyp.  This little bugger causes its own issues and in a small percentage of the time can turn to something more.  For my purposes right now, I will go to Disney with my family knowing that I am healthy!  For this, I am extremely thankful!

What happens when I return?  I have to think about this.  I will have to repeat the pelvic ultrasound in 2-3 months to once again check on the ovarian cysts.  It would be nice if they would go away already!  I will deal with that when needed.

As for the polyp, I do have issues that this would cause.  They recommend an endometrial ablation procedure to remove it. I am not going into detail about the symptoms of or the procedure to get rid of the polyp.  If you are interested click one of the colored links.

Where we will be in 29 days!
Where we will be in 29 days!

For now I can focus on something really important, the quickly approaching Disney trip!  We received our packet from the Disney Express. This is the first time we are staying at a Disney resort so it is the first time having to arrange for a pick up.   I am so far very impressed with the organization and professionalism of everyone we have talked to from the initial reservation, to meal planning to now the express representatives.  There are so many companies who have such poor service, it is refreshing to deal with one who really gets it!

The Happiest place on earth! Have a magical day!

Me, My Family

It has been a long week

I am tired.

I have been to the pediatrician twice this week, had a follow-up with the plastic surgeon and an endometrial biopsy all while the hubby has been out-of-town for work.

It could always be worse!

So, I had my little one home sick today with fever and sore throat.  Thankfully does not seem to be strep so just keeping her loaded up with Motrin and we will wait it out.  Megan continues to have sinus issues, an ENT visit is probably in the near future.  I need to get both of them healthy in the next 35 days…that is the official Disney countdown!  Tomorrow is my nieces birthday and the girls have been looking forward to it since we found out the date.  It is to be a bowling party.  I will evaluate everyone’s condition in the morning.  I hope to be able to go for at least a little while.  FIngers crossed.

My visit with the plastic surgeon was uneventful.  I am still not fully finished with him.  I still have some discomfort from the scare line on the right side.  We agreed to one more appointment in 3 months to make sure that scare settles.

The biopsy was also pretty uneventful.  I do not know if I have a high pain threshold or after the experiences of the last years surgeries, the many years of breast biopsies or child birth but it was really nothing.  It seems that they schedule for at least 30 minutes and often get a bunch of whining, squirming and requests for breaks.  Since we did not have any of that we finished pretty quickly so with the extra time the doctor drew the blood work for the CA-125.  That saves me a trip to the lab!  We did discuss the lack of reliability of the blood work and she explained that it is just part of the puzzle.  I get it and agree.  The blood results should be back next week, 10-14 days on the biopsy.  Until then, I have plenty of other things to think about.