I just received a “happy anniversary” note from WordPress. It made me think for a minute. Indeed it was a year ago that I started this blog to help clear my mind and prepare for surgery.
One year ago the decision was made. A decision to remove a part of my body that I believed would become dangerous. My mind was set on a decision that would change my life forever.
One year ago is important in my history because it changed me as a person, I put into print what was swirling through my mind setting the course for what would happen over the next many months. It was not always easy but ever second was worth it!
One year ago I made the smartest decision in my life! The pathology report several months later proved, had I not made this decision, well nothing is 100% but lobular carcinoma in situ sets forth a dangerous course which would never have been found via mammogram.
One year ago seems like a lifetime ago. I wonder what the next year will hold?
So to this day I have never been tested for the BRCA gene. My decision to have the bilateral prophylactic mastectomy was based solely on my own history. A mother who died of breast cancer and my own irregular pathology which put me at a 50-50 risk which was good enough for me.
The findings of lobular carcinoma in situ validated my decision to act quickly and aggressively. Once I was finished I did not put too much thought into BRCA genes. I was doing the follow ups needed and figured we would get the girls tested as they got older.
I have now come to realize that along with the facts that I knew, men in my family also have prostate cancer which is also associated with the BRCA mutations. So, does it matter at this point? For me personally probably not. I have already sprinted out ahead of breast cancer and will have yet another pelvic ultrasound in a few months to once again check my ovaries.
It does matter greatly for my beautiful girls. For me to be able to protect my girls, to be as proactive as possible with their health I need to have as much information as possible! I reached out to the genetic counselor I met with almost two years ago. Thankfully she replied pretty quickly to my e-mail and is pulling my file to check on the insurance. That was always the sticking point for the testing. This blood work cost well over $3,000 dollars which is just not in the budget. I will not rant too much about the insurance company since they were fantastic as the surgery bills came in. My out-of-pocket was minimal! It is the entire system that is broken. priorities are out of whack.
I will receive word probably in a few days and like everything else will go from there. Until I do hear back, all focus stays on the something really important…10 days until Disney!
This may be the first time I have ever done a double post. I received my Pathology report today finally. I must start with there was NO cancer as expected Thank God! With that said, it was also a very scary call. As I stated earlier in the blog, I decided to have the Bilateral Prophylactic Mastectomy due to the findings of Atypical lobular hyperplasia mixed with my mothers history which resulted in a 50-50 chance of cancer myself. SO, we expected to find this in the path reports.
What we did not expect was what was also found. Lobular Carcinoma In Situ.
“Lobular carcinoma in situ (LCIS) is technically not cancer; but, because it is a marker for the development of all types of invasive and non-invasive breast cancers, LCIS is often thought of as a form of breast cancer.”
Holy Shit! It has been a day filled with emotion….obviously thrilled that I am cancer free! BUT…one of the options given to me was increased screening blah blah.
“Lobular carcinoma in situ usually has no symptoms. Many times, it’s not even detected by routine screening mammograms. This is because, unlike other breast cancers and related conditions, LCIS does not result in the formation of calcium deposits in certain breast cells.:”
For anyone who is faced with the high risk decisions to have the BPM or not….do it! Had I waited another year or two? How different could things have been for my family? I am blessed to not have to answer that question!