Difficult Questions

I continue to be amazed with the depth and intelligence of my own children.  Although  I continue to heal, I am not 100%.  It is no secret to the girls that I am not fully comfortable.  They are aware that my body is still changing.  I am trying to get things back to a normal daily routine but all they have to do is see me while I am changing and it is clear that we are not fully back to normal.

Megan is pretty easy to read.  She wears her feelings on her sleeve so if something bothers her it does not take long to identify it and get it out into the open.  Madison, she is a totally different animal!  Things come flying out of her like missiles out of the blue.  The other night, I was putting her to bed.  We go through our normal routine, which in itself is very structured.  Madison has certain things she has to say and have said to her nightly.  As I give her one last kiss she looks up at me and says, “Mommy, will Megan and I have to have our boobies operated on when we get older?”

I was caught so off guard!  Although I do my best not to lie to my girls, sometimes there is no good truthful answer.  The honest answer is, I just do not know but it is highly probable.  They have two grandmothers who past due to metastasized breast cancer and a mother who according to all of the doctors involved, would have been a breast cancer patient at some point had I not had the Prophylactic Mastectomy.

I gave her a hug and told her that we did not need to worry about such things.  As I walked out of her room, I admit I had a few tears.  I would do anything to protect them!  I guess reality is that for as much as I want, I will not be able to protect them from everything.  Over time, I will seek out advice and take any and all steps needed.  It never ends!

A bit of a Rant

I have never been an avid reader.  My mother and sister both could sit for hours book in hand world tuned out.  My mother tried with me to no avail.  This also made school especially college very interesting.  I guess I am pretty smart.  I graduated with a 3.5 GPA and Dean’s list but my deep dark secret is that I don’t believe that I ever completed a reading assignment.  I used to read the top and bottom line on a page..mabe peek at the middle if I did not get the gist of the page.  I look back now and wonder, how would I have done in school if I actually read an entire book?

This is on my mind right now for two reasons.  First my oldest daughter.  My Megan is a lover of books and I do everything I can to encourage her love!  SHe is sitting here with me right now reading.  She just completed the second grade but the last school check put her on about a fifth grade reading level.

The second reason is that lately I have actually been reading.  I spend much time on the internet reading different blogs, mostly on breast cancer, BRCA genes, Prophylactic mastectomy and another disorder called Cowden Syndrome. When I started this blog, as  I stated before, it was just to clear my own thoughts.  Then I found some blogs that helped provide me strength to move forward and now I sit as one of those blogs that is helping others.  I welcome this change of rolls and take it seriously.

AS I read, I find two themes to be particularly alarming in my opinion even dangerous.  NOW, let me be clear that I am not referring to woman who had been diagnosed with cancer.  I am specifically discussing those of us who are extreme high risk for one reason or another who are lucky enough to be able to take control of our situation before cancer strikes.  The first theme is the  self-pity “breasts are what make me a woman”.  Really?  What makes me a woman is my strength, my do anything attitude, I take responsibility for my own actions, my intuitions, nurturing ability, gentleness and compassion,my ability to kick ass when needed,  my manipulation skills, my pride ,my ability to ask for directions when lost and oh yes that vagina thing (to name just a few).  Breasts themselves are actually just fat that in many cases attack the body they were lucky to be a part of so removing them is not affecting your womanhood but instead securing it! Again, just my opinion.

The other was the “why would you cut off a perfectly healthy part of your body”.  To this I would assume that the person asking is just that..perfectly healthy.  A person who would ask this has not been kept awake at night for weeks at a time waiting for the most recent biopsy results to come back.  They have not had to lie face down in an MRI machine for 45+ minutes, breasts uncomfortably tucked into hard plastic molds. They have not been at a dinner party only to have the thoughts of breast cancer fill their minds instead of the conversation at hand.  They have not been told that you have a 50-50 chance (or in many cases much worse odds) of falling victim to breast cancer.  They have not then had to sit in a room with more than two woman and realize that if someone was going to get cancer statistically it would be me.

So to sum it up I guess I would say this.  Unless you are able to put yourself fully in the shoes of another…keep your opinion to your self.

My Holy Shit Day!

This may be the first time I have ever done a double post.  I received my Pathology report today finally.  I must start with there was NO cancer as expected Thank God!  With that said, it was also a very scary call.  As I stated earlier in the blog, I decided to have the Bilateral Prophylactic Mastectomy due to the findings of Atypical lobular hyperplasia mixed with my mothers history which resulted in a 50-50 chance of cancer myself.  SO, we expected to find this in the path reports.

What we did not expect was what was also found.  Lobular Carcinoma In Situ.

“Lobular carcinoma in situ (LCIS) is technically not cancer; but, because it is a marker for the development of all types of invasive and non-invasive breast cancers, LCIS is often thought of as a form of breast cancer.”

Holy Shit!  It has been a day filled with emotion….obviously thrilled that I am cancer free!  BUT…one of the options given to me was increased screening blah blah.

“Lobular carcinoma in situ usually has no symptoms. Many times, it’s not even detected by routine screening mammograms. This is because, unlike other breast cancers and related conditions, LCIS does not result in the formation of calcium deposits in certain breast cells.:”

For anyone who is faced with the high risk decisions to have the BPM or not….do it!  Had I waited another year or two?  How different could things have been for my family?  I am blessed to not have to answer that question!