Me, Post-Op Bilateral Prophylactic Mastectomy

I have never reblogged someone else’s thoughts before but I fully share my friends outrage here! I wonder if the New York Times article author watched her mother die a long and at times very painful death. I wonder if she ever had to stare into the eyes of her children as she was told she had at minimum a 50/50 chance of developing breast cancer, a disease that has no cure nor is one close to being found after millions and millions spent.

My story is different from my friend at “Beatingcowdens” but when it comes to the prophylactic mastectomy we are sisters.

I wish I could have the last two years of my life back. I wish that I did not have to surgically alter my body. I wish there was no such things as breast cancer. I wish those who would like to speak out in judgement would do their jobs and maybe the rest of us could maybe have our wishes come true but since none of these things can or will happen I want to be clear, I have NO regrets in the decisions I made. Those decisions were not taken lightly and the pathology proved with great certainty that I WOULD have developed breast cancer.

I finish with the same line as my friend, “Don’t talk about my boobs until you have walked in my shoes!”

 

beatingcowdens

“Breast cancer becomes very emotional for people, and they view a breast differently than an arm or a required body part that you use every day,” said Sarah T. Hawley, an associate professor of internal medicine at the University of Michigan. “Women feel like it’s a body part over which they totally have a choice, and they say, ‘I want to put this behind me — I don’t want to worry about it anymore.’ ”

http://well.blogs.nytimes.com/2013/01/21/facing-cancer-a-stark-choice/

The quote above is the last paragraph from a New York Times article published January 21st.  I first read about it here in this blog

Preventative mastectomies under fire

And I must agree with “The Pink Underbelly” as my blood is boiling a bit.

I underwent a prophylactic bilateral mastectomy on March 5, 2012.  I had been diagnosed with Cowden’s Syndrome, alongside my 8 year old daughter, just months before.  I was presented, in January…

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Me, My Family, What do I want?

Retrospection,Introspection and a continued search

what-do-u-want2I wrote a post the other day called What do you want?  As I have thought about the answer to that question all it has done is make me ask myself more questions.  I guess a little introspection is good from time to time.  A long look in the mirror to cleanse the soul.

So, in deciding “what I want”, I started to think about who I am and what I have been through over the last year and a half or so. I scanned through some old posts here and came across one back in April 2012 where I took a shot at a basic introduction.  The only thing I would tend to add or change is that I no longer live in fear of developing breast cancer.  Instead I am very lucky!  I am lucky and thankful that I had the strength to make the decision to have a prophylactic mastectomy. Those who have been peeking in for a while now know what a great decision that was since cancer markers were found in the biopsy.  It was only a matter of time.

I started this blog almost a year ago for myself to clear my thoughts as the process toward the BPM began.  Over time I meet some strong and wonderful woman.  Some of these woman are battling strong_womancancer, others like myself trying to jump out in front but all became inspiration to me in some way.  As the surgeries began, this blog became an avenue to vent, whine and express myself.  It did not matter if anyone actually read but it was nice to know that some did and maybe my experience helped someone the way I was helped.I continue writing now because although I have grown so much personally through this experience, I still do not open up well personally.  This continues to be a great outlet for me.

SO I will continue to type away, rambling about my children, my family and sometimes plain old daily minutia.  I am continuing to work toward the answer of what I want and while doing so will thank god for what I have.  A beautiful family, my health and a future that is wide open.  Not too bad I guess!

That’s for stopping by, I do appreciate it!

wl167

Post nipple reconstruction/revision

Ugh Colonoscopy?

I went to my primary doctor today for the first time in a few years.  All went very well, blood pressure was 100/70 so that blip before the mastectomy was just that, a blip.  After stepping on the scale I can officially say that I am down 40 pounds from my maximum weight and very pleased.

Here is my dilemma of the day, after the doctor wrote me out a script to get a full blood panel  done she tossed in a comment that I may want to have a colonoscopy done.  She said there is a slight increased risk of colon cancer with breast cancer.  BUT I did not have breast cancer.  I would have eventually probably but I did not.

I came home and did some investigation and just don’t know if I really need to do this test now.

It just never ends!