A bit of a Rant

I have never been an avid reader.  My mother and sister both could sit for hours book in hand world tuned out.  My mother tried with me to no avail.  This also made school especially college very interesting.  I guess I am pretty smart.  I graduated with a 3.5 GPA and Dean’s list but my deep dark secret is that I don’t believe that I ever completed a reading assignment.  I used to read the top and bottom line on a page..mabe peek at the middle if I did not get the gist of the page.  I look back now and wonder, how would I have done in school if I actually read an entire book?

This is on my mind right now for two reasons.  First my oldest daughter.  My Megan is a lover of books and I do everything I can to encourage her love!  SHe is sitting here with me right now reading.  She just completed the second grade but the last school check put her on about a fifth grade reading level.

The second reason is that lately I have actually been reading.  I spend much time on the internet reading different blogs, mostly on breast cancer, BRCA genes, Prophylactic mastectomy and another disorder called Cowden Syndrome. When I started this blog, as  I stated before, it was just to clear my own thoughts.  Then I found some blogs that helped provide me strength to move forward and now I sit as one of those blogs that is helping others.  I welcome this change of rolls and take it seriously.

AS I read, I find two themes to be particularly alarming in my opinion even dangerous.  NOW, let me be clear that I am not referring to woman who had been diagnosed with cancer.  I am specifically discussing those of us who are extreme high risk for one reason or another who are lucky enough to be able to take control of our situation before cancer strikes.  The first theme is the  self-pity “breasts are what make me a woman”.  Really?  What makes me a woman is my strength, my do anything attitude, I take responsibility for my own actions, my intuitions, nurturing ability, gentleness and compassion,my ability to kick ass when needed,  my manipulation skills, my pride ,my ability to ask for directions when lost and oh yes that vagina thing (to name just a few).  Breasts themselves are actually just fat that in many cases attack the body they were lucky to be a part of so removing them is not affecting your womanhood but instead securing it! Again, just my opinion.

The other was the “why would you cut off a perfectly healthy part of your body”.  To this I would assume that the person asking is just that..perfectly healthy.  A person who would ask this has not been kept awake at night for weeks at a time waiting for the most recent biopsy results to come back.  They have not had to lie face down in an MRI machine for 45+ minutes, breasts uncomfortably tucked into hard plastic molds. They have not been at a dinner party only to have the thoughts of breast cancer fill their minds instead of the conversation at hand.  They have not been told that you have a 50-50 chance (or in many cases much worse odds) of falling victim to breast cancer.  They have not then had to sit in a room with more than two woman and realize that if someone was going to get cancer statistically it would be me.

So to sum it up I guess I would say this.  Unless you are able to put yourself fully in the shoes of another…keep your opinion to your self.

Day 18 Post OP

So made more progress on our Disney trip!  We will be staying at the Disney Animal Kingdom Villas-Kidani Village. I booked both the park tickets, dining plan and air transportation.  We decided after the year that we have had that we are going all out on this family vacation! Disney is still a company who understands the importance of customer service.  I spoke with a gentlemen, (Dante was his name) who was just fantastic.  I even spent the time to take the survey after to make sure I told them so..everyone takes the time when the experience is bad we all should make sure to say when it is good!

What is funny is when he asked “so how is your summer going so far?”  Of course he is just making pleasant conversation while waiting for the computer to process reservations.  What ran through my head was, well very busy to be honest Dante.  I recently spent a week in the hospital where I had my breasts removed and then refilled with fat from my abdomen.  I have an enormous amount of stitches that run from on end of my stomach to the other and my boobs are really a sight to behold.  NOW, people who know me know that often things will fly out of my mouth sometimes without thinking and other time just to get a reaction.  But in this case, I held back and gave the standard, “not too much”.  I wonder how our interaction would have changed had I given my actual thoughts as the answer?

Some people think that I am insensitive in how I discuss my surgery.  If I offend anyone I am sorry and it is not my intention.  I also realize I can not relate to anyone who has cancer and has been forced into certain decisions.  For me, especially after now having the final pathology reports know that I made the right decision.  The boobs are only flesh that can be pretty easily replaced…bottom line is that had I not removed them they would have eventually tried to hurt me!

Not too much to update today…the abdomen continues to heal nicely.  What a beautiful incision.  The boobs hurt still.  My mobility continues to improve.

My girls come home from their shore vacation today.  I have missed my babies!

Nap, Beach, Nap

I am so happy, today the last of the drains came out!  So much more comfortable.  I have my next appointment in 2 weeks to discuss the next stage.  The girls are still at the shore with my sister so the house is quiet.  I miss them but I have enjoyed the peacefulness.  I have napped, watched some bad TV, napped, walked a bit and napped some more.  It has really felt good!

My sister sent these pictures from the beach.  Looks like everyone is enjoying the last few days.